Beyond Achondroplasia

Growing together with Clara

February 5, 2015
by inesp.alves
2 Comments

How can sleeping position influence obstructive sleep apnea

There are many positions a person can adopt to sleep. This article will make the approach to back and stomach sleep positions (supine and prone). “In 1992, the American Academy of Pediatrics released a statement recommending that all healthy infants be … Continue reading

November 11, 2014
by inesp.alves
1 Comment

Anesthesia recommendations for achondroplasia

This is an important document, by www.orphananesthesia.eu. It´s good to carry it together with all the medical information once is very likely that a person with achondroplasia will need to be submitted, since early days, to some type of surgical procedure … Continue reading

Nasal endoscopy at 2 months old

February 6, 2014 by inesp.alves | 0 comments

This was Clara´s first nasal endoscopy. Her oropharynx had too much edema and the walls were very much collapsed and all her airway tissues were enlarged. Because of that, there was very little space for the endoscope to get through until the epiglottis.

I was starting editing the video and then I realized that it was better to keep it as the original. Just to show the differences between this first exam and the second.

All the bright light you see many times in the video reflects the quantity of times the endoscope probe collided with the airway walls, just because the open space was scarce.
After this exam, Clara was admitted as a ENT patient in Lisbon Central Pediatric hospital.

May 28, 2013
by inesp.alves
1 Comment

Routine evaluation

Today we went to Lisbon again for several things: another transfontanelar ultrasound, a timpanogram, ENT appointment, meeting with the neurosurgeon and to end, an appointment with a well known PhD pediatrician that could possibly help us with some contacts. For … Continue reading

CPAP air intensity

April 28, 2013 by inesp.alves | 0 comments

Since 2 nights ago, Clara slept without using the CPAP because the oximeter gave good oxygen levels all night. So good! Each night without it is a small step for her airway improvement. But this past night, she had to use it for several hours.
It is hard to explain the air pressure that comes from the devide, but by the sound of it, I think you can understand. But wearing it is much harder than what can be imagined to be!

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