Beyond Achondroplasia

Growing together with Clara

Prevention of intracranial hematomas

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A child with achondroplasia has, among other body characteristics, a large and heavy head and disproportional short extremities (arms and legs), increasing the difficulty to control gait.

For that, the probability of hitting the head harder while walking, playing or just trying to stand (specially during the first period of gait acquisition) is much higher comparing with an average height child.

All children hit their heads! But in a child with achondroplasia, a harder impact (revealed by a bump on the head) may cause significant intracranial bleeding.

And yes, I deeply wish I had known and read about this before. But I know this only now and in the hardest way, after knowing that Clara has another potentially serious intracranial alteration.

So please!!! protect your child´s head.

Try to prevent as much you can any harder impact in the head. Instruct your child teachers and family avoiding to worry about a subdural hematoma and its complications.

 Which signs can a child show after a subdural hematoma?

– fever

– irritability

– lethargy

– become more sleepy

– convulsions

– fontanelle bulging

– increase of head circumference

– gait alteration

–  fine motor decrease

Some late signs might be:

– bradycardia (decrease in the heart beat)

– hypertension

– pupil alteration

 

Clara´s chronic subdural hematoma will be monitored in the following months by a transfontanelar ultrasound every 15 days, once she still has an open fontanelle (although is quite small now). This will only evaluate the brain middle line. If the line shows any deviation, she will have to do an urgency MRI or CT .

Even if Clara doesn´t show any neurologic alteration signs until December, she will have another MRI or CT done, just to control if the hematoma has reduced, has the same size or has increased.

A chronic subdural hematoma (CSH) can:

1- Be reabsorbed (Clara´s best chance)

2- Can calcify (its a serious condition, that might happen in a chronic hematoma, causing more inflammation)

3- Or another hemorrhage can happen, increasing the intracranial pressure and complicated neurologic problems.

In our neurosurgeon vision, if Clara keeps okay and without any more head trauma for the next two to three months, the hematoma will be reabsorbed without the need of surgery (trepanation) and any further neurologic complications. For that, she is now in a very close monitoring and she wears a soft helmet while she plays. And she likes the helmet, that makes it easier for all!

2014-10-04 18.13.06

2014-10-04 18.14.16

2014-10-04 18.18.52

 

 

 

2 Comments

  1. Thanks a lot for your advice ! Happy to see Clara again,she is so cute.

  2. Lovely Clara in these pictures Thanks for this article

    Fara Cisse Envoyé de mon iPhone

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