Achondroplasia is much more than a rare condition. In specially, parents of a child that has achondroplasia live a totally new live and gain new life perspectives. They can be emotionally stable and recovered from the initial shock of the diagnosis and might have recovered from it, seeing achondroplasia as part of their child and working to offer their child the best life possible, or by the other side, can feel lost, afraid, hesitant on the future. By sharing social vision and experiences, people can see other sides of this life changing challenge.
For this reason, Beyond Achondroplasia has now a new partnership with The Mighty, and will have now a home page on The Mighty.
The Mighty is a story-based health community focused on improving the lives of people facing disease, disorder, mental illness and disability. More and more people want more than information. They want to be inspired. And The Mighty publishes real stories about real people facing real challenges.
Beyond Achondroplasia focuses on updated information on achondroplasia, from biology, genetics, medicine, therapies and potential treatments under development, helping people with achondroplasia and their families in their lives. And this partnership will help parents, relatives and friends to speak out.
You can submit a story to The Mighty and, by sharing your thoughts, emotions and experiences related to achondroplasia, you will be help others also.