EURORDIS has published a call for patient organisations to join the European Patient Advocacy Groups (ePAGs). There is an ePAG for each ERN project proposal / thematic area of expertise of ERNs. Patient representatives from any European Patient organisation (member or non member of EURORDIS) are called to join the ePAG and fill in the EPAG Matchmaker tool here.
Join the ePAGs to connect with the ERN patient community
EURORDIS Guide for Patient Advocates in ERNs
All information are available here