Beyond Achondroplasia

Growing together with Clara

Day dreaming by Joan Pahisa

| 1 Comment

Joan is an amazing young man. He has a great smile, always inspiring others, very well-educated and with a genial energy for sports. He is totally engaging.

I meet him last October during the International Congress around achondroplasia and other skeletal dysplasias. Joan loves basketball. Having SED, spondyloepiphyseal dysplasia, never stopped him to play is favorite sport.

I really want to share this documentary about him.

 

At Clara´s kindergarten, they have one ballet class on Fridays. The last three weeks, whenever she heard her friends saying they were going to the ballet class, she insisted to her teacher that she wanted to go too. And everyone says that she loves it.

I never thought that Clara could go for ballet.

But there she goes. And I´m very happy for this “invisible wall” she is breaking in front of me and others, because she doesn´t feel having any wall keeping her from doing whatever she feels like.

One Comment

  1. nossos filhos são apenas crianças descobrindo o mundo, cheio de sonhos a serem realizados, sempre penso desta forma, meu Enzo, meu amor minha vida

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