Beyond Achondroplasia

Growing together with Clara

Achondroplasia medical centers of expertise – Europe and USA

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At the Orphanet site, it possible to find a list of 49 medical management centers and 10 genetic counselling centers in Europe. It easy to notice that Italy and France are quite ahead of other countries, having several centers.

It´s demanding to create and develop other expertise centers in Europe and worldwide.

In London there is a center since 2013, the Achondroplasia Clinic, held at the Evelina London Children’s Hospital, St Thomas’ Hospital.

In the USA, I found this site mentioning the existence of 34 expertise centers in achondroplasia. The most interesting thing about this site is that mentions how are the expert doctors in achondroplasia and the publications released by each center.

I thank any update of this information.

 

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